|
#
|
Chromosome
3 Registry If your child has a chromosome
3 disorder, please take the time to send your information to
the registry administrator, and visit some of the links below.
We are glad to help in any way we can. |
|
|
#
|
8p Duplication Support Group
Genetics Center, Children's Medical Center, 1 Children's Plaza
Dayton, OH 45404
Phone: 937.641.5645 (Faith Callif-Daley) - Fax: 937.641.5325
E-mail: callif-daleyf@childrensdayton.org
|
|
|
#
|
Trisomy 8 Informal
Support Group
E-mail: khallent@aol.com
Trisomy 8 Mosaic (parent has written a pamphlet)
E-mail: j722@worldnet.att.net
|
|
|
#
|
www.9pminus.org
Trisomy
9 International Parent Support |
|
|
#
|
Distal
Trisomy 10q Families This site is specifically
designed and supported for the benefit of families of children
with Distal Trisomy 10q. The primary objectives are: Provide
a registry of children and families with 10q so that families
can contact each other. Provide a place where families can submit
information on their children and experiences. Provide links
to related web sites. Others to be determined. |
|
|
#
|
Europæisk
11q netværk |
|
|
#
|
- S.O.F.T
UK - Support Organisation For Trisomy 13/18 and related disorders
- S.O.F.T
Ireland - Support Organisation For Trisomy 13/18 and related
disorders
- Kelli
Dolly Story Trisomy 13 |
|
|
#
|
Isodicidentric
15 Group Welcome, Wilkommen, Bienvenue,
Benvenuto. This group is for European families who have a family
member with isodicidentric 15 (parents/carers/grandparents/siblings
etc) and related disorders. This site has been set up to chat
with other European idic 15 families and any European language
can be spoken. We would like to share information with each
other and offer support. We would like to hopefully hold local
meetings/days out in our native country and visit our idic 15
friends in other European countries. This site has been set
up by 3 EU families from Italy, Germany and the UK. |
|
|
|
#
|
Disorders
of Chromosome 16 Foundation is dedicated
both to promoting research and providing information on chromosome
16 abnormalities. The Foundation provides information, education,
and support to families of children living with a chromosome
16 disorder and to expectant parents confronting a similar diagnosis.
The Foundation also serves as a resource aiding family, friends,
caregivers, and medical professionals in their supportive roles.
. |
|
|
#
|
The
Chromosome 18 Registry & Research Society
is a lay advocacy organization
composed primarily of the parents of individuals with one of
the chromosome 18 abnormalities. We are also proud to count
among our members affected individuals, extended family members
and professionals. Membership is open to any interested person.
Support Organisation
for Trisomy 13,18 and related disorders
S.O.F.T. is a nonprofit volunteer organization offering support
for parents who have had a child with a chromesome disorder,
and education to familes and professionals interested in the
care of these children.
Chromosome
18 Links to stories |
|
|
#
|
Ring 20 Chromosome Support Group
(forming spring 1999)
Tracy and Paula Pritchard
155 Newell Ave
St. Clairsville, OH 43950
E-mail: tapritch@1st.net
|
|
|
#
|
- Chromosom
22 Central
- Face22 |
|
|
#
|
- Triplo
X , Triple
x syndrom
- Fragilt
X syndrom |
|
|
